Key points
[To be written – scientific committee validation]
After a diagnosis
[To be written – scientific committee validation]
Day to day
[To be written – scientific committee validation]
Practical steps and rights
[To be written – scientific committee validation]
Parent support groups
[To be completed by the Board] How the parent support groups work, cities and dates.
Upcoming dates will be announced on the News page.
Who wrote this page?
- Written by
- To be appointed
- Scientific committee
- Validation pending
- Last updated
- 8 November 2026
Sources
Sources will be published with the validated text.